Tired tired tired everywhere.

I have been so tired in the most recent weeks. Going back to work has taken its toll on me. My wife and kids have felt it as well. Starting school and keeping up with all the different jobs has been exhausting. I barely have time to function.

I came across a meme that help summarize how I have been feeling. I do feel that fibromyalgia could be changed to almost any chronic disease. I would be very presumptuous to think we have the corner on pain.

I am pressing forward. I am doing my best not to let this hold me back.

Any prayers would be most appreciated.

#hugapony

Begin again.

I’ve been scared to write for the past while. It’s not something that I have had to deal with in the past. I’ve always found words to be able to explain myself or to vent my feelings or even to help other people out. I find myself more and more afraid of sharing in the most recent weeks.

I went to the doctor here recently and was prescribed more medication. It has been a rough time adjusting to that and my other meds. I am finding it much harder to focus and to write and be creative. It has gotten bad enough that I haven’t posted in over a week which is something that I haven’t done since starting my blog over two years ago. Words don’t flow the way they used to and even the simplest tasks seem harder now days. I’ve even been contemplating not continuing my blog and ending it where it stands now.
I have decided against doing so.
I know my blog has been an inspiration to quite a few people. I have received more than one note or letter from people telling me how much they appreciate me writing and helping them through difficult times. I feel somewhat responsible for helping continue to help people out through tough times in their lives. That is not something I can throw away very lightly.
And so I asked my dear friends, please bare with me over the next coming weeks as I am continuing to adjust to this new life on more meds. I have recently started a overnight stocking job for a large retail company as well to keep things mixed up. I also had some other interesting life news happen that I cannot share at this time. Some of that news was good and some of it was bad. Rest assure I will continue to do my best to help encourage others, and continue documenting my journey through depression and anxiety and other invisible disabilities.
I thank you all who read this. Know that I love each and everyone of you and I look forward to bringing you more words of wisdom and encouragement.

#hugapony my friends.

Labor Day quickie.

I find the title funny because I am now employed! I am back in the labor force and am going to be stocking shelves overnight at a big box store. My family is in need of a little extra income to make it through the month and pay some bills off. I really wanted to be able to make my blog work on donations or my convention work to pick up the slack but that is not the case.

I hope everyone remembers to treat others as humans this weekend and not like robots. I do believe in good karma and treating our fellow man as a person and not a cog in a corporate machine. As you encounter people working this holiday weekend, go out of your way to say thank you. Make them feel special. You could help save a life.

Pilling around.

I had another doctor’s visit this past week. My regular 3 month follow-up. It was supposed to be a regular check up but this was my first one since my asking about my condition and fibromyalgia. It was a bit hard to accept a negative response when I first asked about it. I was told it was all in my head and I was dismissed. It was not what I thought my doctor who has helped me so much would do to me.

I went in to the exam room and had all my vitals checked (lost 2 pounds at 210, 126/80, 97.1 temp). Chatted with the nurse, who knows me on sight now, about my emotional support dog and how much he is helping. Small talk. She left and I waited in silence.

After 5 minutes my doctor came in.

She asked how I was doing and I told her not very well. My pain had been flaring up quite a bit, life was still very stressful with moving into a new apartment (and dealing with new management and other issues), my wife being in another car accident (she was OK but is doing physical therapy because of injuries sustained), and surviving several other private things that I cannot share here.

She listened as she checked my lungs and commented a word or two of concern when needed. She then said she had been looking over my case and she agreed that she might have been too hasty in her decision to dismiss my claims, especially in light of me having increased pain. She was going to add another prescription to my usual medication to help with the pain.

I was surprised but happy to have her, in my opinion, back on my side looking out for me.

 

I went home and filled all my meds and in the next few days dealt with the addition of more side effects (all three of my meds cause drowsiness and dizziness) and my body trying to respond to them. It has been a rough weekend for me.

I have had to rely on my family and friends quite a bit as I have had more than several moments of having to clutch the wall in a dizzy spell, falling asleep in the middle of the afternoon, not mixing them up or overdosing, and making sure I am not driving. I am not sure people know the responsibility of taking medications. There is a lot more work than people know.

Making sure to keep track of them (there is a fantastic app called Medisafe that tracks when to take something, how many pills you have, and when to refill) is a part-time job. You become a pharmacist, almost, with knowing what to take, how to take it, when to take it.  You have to check in with those around you to see how badly its affecting you because your reality is skewed. You fight to maintain your concentration in the simplest tasks. You get criticized because you are on medication and you are weak and just need to feel better.

I am here to tell you that it is OK to need medication to help you.

I am here to encourage you that it is OK to get help.

I am here to tell you to talk to your doctor to get help.

I am here to tell you to stop listening to those who criticize.

Only you know what you are going through. I understand the struggle and the need for help. I have lived with the pain daily. It is beyond OK to look for help in your life. Lets end all the shaming in being prescribed medication BECAUSE YOUR BRAIN IS SICK. If you had a kidney infection or diabetes, you would take antibiotics or insulin to help your body. This is considered normal. The brain should be treated the same way.

Sometimes it can be therapy (stuffed or otherwise).

Sometimes it takes medication.

There is no shame in asking for help.

I’m not.

#hugapony

 

Love Letter

We all need love. As humans, it is something we all want. I want everyone on this blog to know that I love you. You read this blog and by doing so you show me love. I am called by my God to love everyone. I do my best and try to help those I love. I feel my purpose is to share love in this world. I feel my purpose is to help others. I have a wife whom I love dearly. I have two amazing daughters that I love.

And I have all of you as well.

 

If you ever feel like no one loves you, bookmark this page. Read it again. Watch an amazing video. Leave a comment (once or a thousand times), I will respond each time. Someone loves you always. I believe that by sharing love, we might be able to stop some of the hate.

I love you all.

#hugapony my friends.

Quicky. Busy season.

I have been in the busy season for conventions. August is very busy month for me. I have worked 5 events in 6 weeks, including several panels for my Invisible disability panel. 

While this has been enjoyable helping and working, I have not had the time to sit down and write as much as I should. I apologize and I hope to be back in the swing of things soon.

Know that I love you all and that you are all wonderful people. I want you to remember that you (yes, you) are wonderfully made and are special to me.

#hugapony

Something New

I have been working on a project for a bit now and I am finally ready to share it with the rest of the world. I have started a Patreon page. This is a website that helps support artists and writers, like a kick-starter or crowdfunding, and allows people like me income to support what we do.

https://patreon.com/user?u=3817496

I have been struggling with doing this for a bit now. I have never intended to monetize my blog (it will always be free if I can help it). However, with the time it take to do panels at conventions and speak (which I don’t get paid for) and the time and money it takes to work a blog (which also I don’t get paid for and I actually pay money to maintain) I have felt a need to move towards a support system.

It hasn’t been easy.

So I invite all of you, if you read what I have and enjoy what I do either online, in person, or at a convention, please feel free to donate! Thank you all!

#hugwp-1459723822817.jpgapony

Contentment v Complacent

I have been know to be complacent from time to time. I get caught in a rut and just coast through my day as best as I can. While not good, I have felt that it just gets me through another day and I am able to hope for a better one tomorrow.

Contentment is something I am striving for now. I want to be content in what I have and what I live with. Contentment is feeling happy regardless of your life at that moment. It is looking for the joy in your life and the small things that help make it through the day.

I find that a lot of people confuse the two. They are not interchangeable. Complacent is lazy. It allows people and events around you to control you. It forces itself on you. You become Complacent. Contentment is looking and choosing to accept what is going on around you. You can still have bad days and be content. It is a state of being.

I have tried always to go from a human doing to a human being.

I am by no means perfect. My wife likes to comment on how people try to be perfect and strive for that perfectionism; people who try, always fail at being perfect. I agree, no one will ever be perfect. But you can be content. People who are content live better lives with less stress.

Now please don’t mistake contentment with complacency. You can be content and still strive for a better life with more in it. Here is where people veer off and think that by being content they do not strive for more. Complacency does this. You accept your lot in life and that is all you can hope for. The cards dealt you a hand that is horrid and you got to play on through. Contentment is realizing that you might can win with your cards already but, if not, you get another round the next deal.

Complacency is stagnant.

Contentment is found joy.

I have had to do serious thinking about my life and my mental and physical health in the recent months. I have had to make choices that will affect my life. I have had to recognize my own complacency. I have just accepted my fate and I have to live with it. We all have to live my mental illness and disability. I am making those around me, nay, forcing those around me to accept me and my condition.

Selfish no?

I now acknowledge that I started that path. I am not proud of it. I am now working towards contentment. I am working on helping others; either through panels or my blog or even a phone call from a friend. In a most recent panel, I talked about how my life has given me a superpower, my condition. It makes me more aware and effective in helping others. If I can show compassion and help others, who else will it inspire? I am choosing to be a better person and be content.

So I ask you, are you content or complacent?

I choose joy. I choose to find joy. I choose my soft plush ponies to hug and help me through bad times and am thankful for them. I am thankful for my family and friends who accept me. I am choosing to be grateful for my life. Complacency is a breeding-ground for bitterness and bitterness helps no one.

What do you choose?

#hugapony my friends.20141024_131856

Helping hands.

I had a solo panel at Anime Overload in Austin, Texas this past weekend. I managed to speak clearly, not break down crying, and I hope I change some lives.

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It might not show it here, but it was an almost full panel with most of the chairs filled (including my thumb at the bottom right corner of the screen!). One of the things I do at this type of panel is close the door and make it a safe room. We keep what happens behind those doors safe and secure. Stories that are shared and experiences that happen are locked for only those in the room to hear.

I enjoy the help it brings to others. I have been asked to continue this type of panel for at least two other shows. It shows the growing need to talk openly about things like depression and other mental illnesses and give support to those who need it. I have been blessed to have people support me on this adventure and I am humbled to have been put in this position.

One thing I notice in this panel is the raw emotion that comes from the room. Being able to handle that and to deal with it has never been easy. I spent the first hour after this panel trying to keep to myself and deal with all the emotional energy that comes from talking/venting/sharing. I have yet to see a panel where at least 50% of the attendees did not cry (myself included).

Now this is not just a panel about openly talking about our lives but also how to help others and ways to deal with problems. I always invite people to share their lives and experiences with others to show what works and doesn’t work. I share my life and ways to help others. I push them to form a community of individuals to bond together and to build support groups.

At the end of the day I was able to talk to several people closely and give them some guidance in their lives. I was approached by the directors toward the end of the convention because someone (or more than one I am not sure) spoke out at a meeting requesting me to continue to do the panel. Again, humbled was just the first thing I felt.

I am drained at the moment but happy. I enjoy helping people and it makes me want to do more. It takes a lot out of me to speak like this but I hope to get better at it. If you were at the panel and want to leave a comment OR you would like to request a panel for a convention, leave a comment.

Leave a comment to just say hey if you want, I will respond.

Thank you all for your love and support.

#hugapony my friends

Panelling the walls.

I am on my way to a convention called Anime Overload to work, like I do at most conventions. I am also doing Another invisible disability panel. 

Fun times. 

I believe this will be a solo run, not that I haven’t done that before, so this will be interesting to say the least. Also, working and panels don’t always mix so again interesting. 

My, what an interesting life I live. 

Hope to see you out here.